Emily... my thoughts and prayers are with you and your little boy. I am so sorry to hear that you are having these struggles. We have a friend whose little girl was born with her intestines outside her body. She had multiple surgeries and was in the NICU for awhile, but is perfectly healthy and normal now. Even if you know it is fixable, I am sure that this is NOT easy to think about or go through! {{{HUGS}}} for you! I am praying for the best!