Not officially, but a lot of my same issues and the medication I take is also for MCAS. My diagnosis is CIU - Chronic Idopathic Uticaria and I take monthly Xolair injections. It's been a life saver. I'm not sure if you're at the point of biologic injections, but it works for A LOT of MCAS people as well. I was still reacting even while taking massive prednisone doses on top of the 7 antihistamines (I also do the pepcid which is a 2ndary antihistamine) I take daily.
Big hugs & hopefully now that you have a diagnosis, you can get some answers & the correct meds!
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